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Anaesthesia in rare diseases

 

The OrphanAnaesthesia project is a collaboration between the Deutsche Gesellschaft für Anästhesiologie und Intensivmedizin e.V. (German Society for Anaesthesiology and Intensive Care Medicine, DGAI), Orphanet, and other European organisations to publish recommendations for the anaesthesiological care of rare diseases. The aim is to increase patient safety.

PNH recommendation for action (English)

Dyskeratosis congenita recommendation for action (English)

List of all recommendations for action (most of them available in English)

The Patient Safety Card (English) can be used by patients suffering from a rare disease, for example, to point out information about special features of the rare disease during anaesthesiological treatment (surgery, pain therapy, etc.) in an emergency.