{"id":3714,"date":"2019-12-26T18:33:40","date_gmt":"2019-12-26T17:33:40","guid":{"rendered":"https:\/\/aa-pnh.pe-dev.de\/diseases\/anaesthetics-in-rare-diseases\/"},"modified":"2021-12-25T09:55:01","modified_gmt":"2021-12-25T08:55:01","slug":"anaesthetics-in-rare-diseases","status":"publish","type":"page","link":"https:\/\/aa-pnh.org\/en\/diseases\/anaesthetics-in-rare-diseases\/","title":{"rendered":"Anaesthetics in AA\/PNH"},"content":{"rendered":"<h2>Anaesthetics in rare diseases<\/h2>\n<p>&nbsp;<\/p>\n<p>The <a href=\"https:\/\/www.orphananesthesia.eu\/de\/\" target=\"_blank\" rel=\"noopener noreferrer\">OrphanAnaesthesia<\/a> project is a collaboration between the <a href=\"https:\/\/www.dgai.de\/\" target=\"_blank\" rel=\"noopener noreferrer\">Deutschen Gesellschaft f&uuml;r An&auml;sthesiologie und Intensivmedizin<\/a><a href=\"https:\/\/www.dgai.de\/\" target=\"_blank\" rel=\"noopener noreferrer\"> e.V.<\/a><a href=\"https:\/\/www.dgai.de\/\" target=\"_blank\" rel=\"noopener noreferrer\"> (DGAI)<\/a> (German Society for Anaesthesiology and Intensive Care Medicine, DGAI), <a href=\"https:\/\/www.orpha.net\" target=\"_blank\" rel=\"noopener noreferrer\">Orphanet<\/a> and other European organisations to publish recommendations for the anaesthesiological care of rare diseases. The aim is to increase patient safety.<\/p>\n<p><a href=\"https:\/\/www.orphananesthesia.eu\/de\/erkrankungen\/fertige-handlungsempfehlungen\/paroxysmale-n%C3%A4chtliche-h%C3%A4moglobinurie\/542-paroxysmal-nocturnal-haemoglobinuria-1\/file.html\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>PNH<\/strong><\/a> recommendation for action<\/p>\n<p>Recommendation for action for <a href=\"https:\/\/www.orphananesthesia.eu\/de\/erkrankungen\/fertige-handlungsempfehlungen\/dyskeratosis-congenita-1\/909-dyskeratosis-congenita-1\/file.html\" target=\"_blank\" rel=\"noopener noreferrer\">Dyskeratosis congenita<\/a>, list of <a href=\"https:\/\/www.orphananesthesia.eu\/en\/rare-diseases\/published-guidelines.html\" target=\"_blank\" rel=\"noopener noreferrer\">all recommendations for action<\/a>.<\/p>\n<p>The <a href=\"https:\/\/www.orphananesthesia.eu\/de\/docman-de\/authors\/dear-author\/standardized-template\/907-patient-safety-card-english-online.html\" target=\"_blank\" rel=\"noopener noreferrer\">Patient Safety Card<\/a> can be used by patients suffering from a rare disease, for example, to point out information about special features of the rare disease during anaesthesiological treatment (surgery, pain therapy, etc.) in an emergency.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Anaesthetics in rare diseases &nbsp; The OrphanAnaesthesia project is a collaboration between the Deutschen Gesellschaft f&uuml;r An&auml;sthesiologie und Intensivmedizin e.V. (DGAI) (German Society for Anaesthesiology and Intensive Care Medicine, DGAI), Orphanet and other European organisations to publish recommendations for the anaesthesiological care of rare diseases&hellip;.<\/p>\n","protected":false},"author":7,"featured_media":0,"parent":3689,"menu_order":101,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-3714","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/aa-pnh.org\/en\/wp-json\/wp\/v2\/pages\/3714","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aa-pnh.org\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/aa-pnh.org\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/aa-pnh.org\/en\/wp-json\/wp\/v2\/users\/7"}],"replies":[{"embeddable":true,"href":"https:\/\/aa-pnh.org\/en\/wp-json\/wp\/v2\/comments?post=3714"}],"version-history":[{"count":0,"href":"https:\/\/aa-pnh.org\/en\/wp-json\/wp\/v2\/pages\/3714\/revisions"}],"up":[{"embeddable":true,"href":"https:\/\/aa-pnh.org\/en\/wp-json\/wp\/v2\/pages\/3689"}],"wp:attachment":[{"href":"https:\/\/aa-pnh.org\/en\/wp-json\/wp\/v2\/media?parent=3714"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}