{"id":3611,"date":"2021-05-29T10:45:31","date_gmt":"2021-05-29T08:45:31","guid":{"rendered":"https:\/\/aa-pnh.pe-dev.de\/survey-on-covid-19-at-aa-and-pnh\/"},"modified":"2021-12-08T10:20:06","modified_gmt":"2021-12-08T09:20:06","slug":"survey-on-covid-19-at-aa-and-pnh","status":"publish","type":"post","link":"https:\/\/aa-pnh.org\/en\/survey-on-covid-19-at-aa-and-pnh\/","title":{"rendered":"Survey on COVID-19 at AA and PNH"},"content":{"rendered":"<p><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/aa-pnh.org\/wp-content\/uploads\/2021\/05\/impfung-300x200.jpg\" alt=\"Spritze mit Fl&auml;schchen f&uuml;r Impfung &copy; weyo\" width=\"150\" height=\"100\" class=\"alignnone size-medium wp-image-3576\" srcset=\"https:\/\/aa-pnh.org\/wp-content\/uploads\/2021\/05\/impfung-300x200.jpg 300w, https:\/\/aa-pnh.org\/wp-content\/uploads\/2021\/05\/impfung.jpg 307w\" sizes=\"auto, (max-width: 150px) 100vw, 150px\"\/><\/p>\n<p>Dear AA \/ PNH fellow patients,<\/p>\n<p>Some time ago we informed you about a survey initiated by our association in cooperation with the <a href=\"https:\/\/lichterzellen.de\" rel=\"noopener\" target=\"_blank\"><em>lichter<\/em> zellen foundation<\/a> . The purpose of this survey is to record the effects that COVID-19 vaccination has on our patient group. At the same time, AA \/ PNH patients who have recovered from a COVID-19 disease can also take part in the survey.<\/p>\n<p>We were able to make the survey known around the world, among other things, through the global network <a href=\"https:\/\/pnhglobalalliance.org\/\" rel=\"noopener\" target=\"_blank\">PNH Global Alliance<\/a> . In the meantime, 72 patients from Germany, Austria and Switzerland and 12 patients from Europe have taken part in our survey. We are particularly pleased about the participation of 8 patients so far from Australia, Iran, Canada, Turkey and the USA.<\/p>\n<p>This gives us the chance to make the results of this survey available to science in order to enable better care for our relatively small patient group in the future.<\/p>\n<p>In order to achieve meaningful results, we are still dependent on the active participation of AA \/ PNH patients. Please pay attention to our survey and take a few minutes to answer the anonymous survey. You are helping all AA and PNH patients.<\/p>\n<p><!--more--><\/p>\n<p>If you have already entered data and have since received a COVID-19 vaccination or a blood count, for example, please enter this in the survey. It only takes a few minutes.<\/p>\n<p>The survey can be called up under the following link: <a href=\"\/?page_id=4123\" rel=\"noopener\" target=\"_blank\">https:\/\/aa-pnh.org\/umfragen\/irvap\/de\/<\/a> , in English under <a href=\"\/?page_id=4132\" rel=\"noopener\" target=\"_blank\">https:\/\/aa-pnh.org\/umfragen\/irvap\/en\/<\/a><\/p>\n<p>Thank you in advance for your participation!<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Dear AA \/ PNH fellow patients, Some time ago we informed you about a survey initiated by our association in cooperation with the lichter zellen foundation . The purpose of this survey is to record the effects that COVID-19 vaccination has on our patient group&hellip;.<\/p>\n","protected":false},"author":3,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"gallery","meta":{"footnotes":""},"categories":[86,87,81,101,100],"tags":[99,89,103,85,102],"class_list":["post-3611","post","type-post","status-publish","format-gallery","hentry","category-illness","category-infection","category-medication","category-opinion-poll","category-vaccination","tag-aplastic-anemia","tag-infections","tag-opinion-poll","tag-pnh-en","tag-vaccination","post_format-post-format-gallery"],"_links":{"self":[{"href":"https:\/\/aa-pnh.org\/en\/wp-json\/wp\/v2\/posts\/3611","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aa-pnh.org\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/aa-pnh.org\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/aa-pnh.org\/en\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/aa-pnh.org\/en\/wp-json\/wp\/v2\/comments?post=3611"}],"version-history":[{"count":0,"href":"https:\/\/aa-pnh.org\/en\/wp-json\/wp\/v2\/posts\/3611\/revisions"}],"wp:attachment":[{"href":"https:\/\/aa-pnh.org\/en\/wp-json\/wp\/v2\/media?parent=3611"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/aa-pnh.org\/en\/wp-json\/wp\/v2\/categories?post=3611"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/aa-pnh.org\/en\/wp-json\/wp\/v2\/tags?post=3611"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}