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Anaesthetics in rare diseases


The OrphanAnaesthesia project is a collaboration between the Deutschen Gesellschaft für Anästhesiologie und Intensivmedizin e.V. (DGAI) (German Society for Anaesthesiology and Intensive Care Medicine, DGAI), Orphanet and other European organisations to publish recommendations for the anaesthesiological care of rare diseases. The aim is to increase patient safety.

PNH recommendation for action

Recommendation for action for Dyskeratosis congenita, list of all recommendations for action.

The Patient Safety Card can be used by patients suffering from a rare disease, for example, to point out information about special features of the rare disease during anaesthesiological treatment (surgery, pain therapy, etc.) in an emergency.