Survey on COVID-19 at AA and PNH

Dear AA / PNH fellow patients,

Some time ago we informed you about a survey initiated by our association in cooperation with the lichter zellen foundation . The purpose of this survey is to record the effects that COVID-19 vaccination has on our patient group. At the same time, AA / PNH patients who have recovered from a COVID-19 disease can also take part in the survey.

We were able to make the survey known around the world, among other things, through the global network PNH Global Alliance . In the meantime, 72 patients from Germany, Austria and Switzerland and 12 patients from Europe have taken part in our survey. We are particularly pleased about the participation of 8 patients so far from Australia, Iran, Canada, Turkey and the USA.

This gives us the chance to make the results of this survey available to science in order to enable better care for our relatively small patient group in the future.

In order to achieve meaningful results, we are still dependent on the active participation of AA / PNH patients. Please pay attention to our survey and take a few minutes to answer the anonymous survey. You are helping all AA and PNH patients.

If you have already entered data and have since received a COVID-19 vaccination or a blood count, for example, please enter this in the survey. It only takes a few minutes.

The survey can be called up under the following link: https://aa-pnh.org/umfragen/irvap/de/ , in English under https://aa-pnh.org/umfragen/irvap/en/

Thank you in advance for your participation!