PNH Tag

08/07/2020

Survey by the Aachen University Hospital on the consequences of the COVID-19 pandemic for AA / PNH patients

Since the current COVID-19 pandemic creates a lot of unrest and new questions arise every day, the University Clinic Aachen, under the direction of Priv.-Doz. Dr. Fabian Beier developed a survey (so-called Soci-Survey). In doing so, the clinic would also like to meet the wishes of many patients to collect and evaluate data on the current COVID-19 situation in order to learn about the effects of the pandemic on personal life and medical care as well as knowledge of its course and frequency of COVID-19 especially in patients with PNH and / or AA or dyskeratosis congenita (DKC).READ MORE
By Ulrike
11/05/2020

DGHO guideline on coronavirus infection

in patients with blood and cancer diseases

 

**** updated on 05/11/2020 ****

The German Society for Hematology and Medical Oncology (DGHO) updated its guideline for coronavirus infection (COVID-19) in patients with blood and cancer diseases on May 11, 2020. In its guideline, the DGHO explains what SARS-CoV-2 exactly means, names the risk factors and gives advice on prevention and therapy, among other things. She deals with aplastic anemia under point 6.2.9, PNH under point 6.2.56. For further information on COVID-19, see also the information provided by Dr. Höchsmann made recommendations as well as our blog post .
By Ulrike
03/01/2020

Survey on working conditions

The University of Cologne - Chair for Work and Vocational Rehabilitation - would like to find out in an anonymous online survey what the working conditions of people with health impairments are like. The aim is to use the information obtained "at first hand" to help improve their working conditions in the long term. Anyone over the age of 18 who is currentlyREAD MORE
By Ulrike
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