We need you!

Our association is involved in a wide variety of areas – we provide information and advice to patients and their relatives, offer local group meetings, and operate information stands at events and conferences

(e.g. patient days in Essen and Ulm, DGHO, typing campaigns), represent the interests of patients in political committees at national and international level, are involved in our federal associations (DLH, ACHSE), organise patient days, and much more.


In order to be able to continue our work in such a versatile manner, we need support. Do you want to help? Regardless of whether you are writing texts, want to take part in stand supervision, networking, social media or lobbying or have other ideas – give us a call or write to us:


Telephone 030 54909 4080

Email info@aa-pnh.org

Web www.aa-pnh.org


We are looking forward to your message!