07/12/2020
Pandemic Impact Survey on AA / PNH Patients
In July / August 2020, under the leadership of Priv.-Doz. Dr. Fabian Beier started the first round of a survey to record the effects of the SARS-CoV-2 pandemic on AA and PNH patients in Germany. The focus was on the availability of information on COVID-19 and delays in treatments. We were very pleased that the lichterzellen foundation and our association were included in the design of the survey.The evaluation of the first round of questions showed that around 20% of the respondents had little or no access toWEITER