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Welcome to our website!

We provide information about Aplastic Anaemia and PNH and our offers for patients and relatives. If you have any questions or comments, please feel free to contact us.

Never give up – you are not alone!

Download of our Information Brochure

 

Letter of support

Partial illustration of a severely disabled ID card Do you have problems with your severely disabled ID? Our umbrella organization ACHSE (Allianz Chronic Seltener Erkrankungen eV) has written a letter of support to the responsible office *, which refers to the difficulties in determining the degree of disability (GdB)WEITER

5th seminar for patients and relatives in Ulm

On May 11th, after two years, the 5th Patients and Family Members' Day for Aplastic Anemia and PNH took place in Ulm in the premises of the Institute for Transfusion Medicine and Immunogenetics with many interesting lecturesWEITER

positive opinion for ravulizumab

Ravulizumab (Ultomiris®), the successor to eculizumab (Soliris®) by the manufacturer Alexion Pharmaceuticals, Inc., has been approved by the Committee for Medicinal Products for Human Use (CHMP) of the European Medicines AgencyWEITER