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We provide information about Aplastic Anaemia and PNH and our offers for patients and relatives. If you have any questions or comments, please feel free to contact us.

08/09/2019 In illness, offers By Ulrike

Letter of support

Do you have problems with your severely disabled ID? Our umbrella organization ACHSE (Allianz Chronic Seltener Erkrankungen eV) has written a letter of support to the responsible office *, which refers to the difficulties in determining the degree of disability (GdB)WEITER

10/08/2019 In Information booths, Publicity, Typing By Ulrike

Successful typing campaign and interview with GZSZ star Chryssanthi Kavazi

On July 28, 2019, a typing campaign took place in the Potsdam Metropolis Hall, organised by RTL, Filmpark Babelsberg, UFA Serial Drama and DKMS WEITER

04/08/2019 In Experience report, illness, offers By Ulrike

Website updated again

A few weeks ago we had updated the chapter "Aplastic Anaemia". Now we added the new text on Paroxysmal Nocturnal Haemoglobinuria (PNH): https://aa-pnh.org/en/diseases/pnh/. We also added a new patient storyWEITER

21/07/2019 In offers, Studies By Ulrike

Website updated

Until recently, the text was only available inour brochure. We now added the updated chaper on "Aplastic Anaemia" to our website: https://aa-pnh.org/en/diseases/aplastic-anaemia/

18/07/2019 In Publicity, Typing By Ulrike

Aplastic anaemia prompted typing campaign

On July 2nd, 2019, RTL ran an episode of “Good Times, Bad Times” (GZSZ), in which Laura, one of the protagonists, fell ill with aplastic anemia. Also in the following episodesWEITER

04/07/2019 In Medication By Ulrike

Ravulizumab (Ultomiris®) approved for the treatment of PNH!

On July 2nd, 2019, ravulizumab (Ultomiris®) was approved in the EU for the treatment of adult patients with PNH. Patients are suitable for treatmentWEITER

13/05/2019 In Information booths, Patient days By Ulrike

5th seminar for patients and relatives in Ulm

On May 11th, after two years, the 5th Patients and Family Members' Day for Aplastic Anemia and PNH took place in Ulm in the premises of the Institute for Transfusion Medicine and Immunogenetics with many interesting lecturesWEITER

12/05/2019 In Uncategorized By Ulrike

New board of the association

At the general meeting of our association on May 11th, 2019, the members re-elected the board. WEITER

10/05/2019 In offers By Ulrike

Our new information brochure is here!

Our new information brochure is published hot off the press as of April 2019! Download

27/04/2019 In Studies By Ulrike

positive opinion for ravulizumab

Ravulizumab (Ultomiris®), the successor to eculizumab (Soliris®) by the manufacturer Alexion Pharmaceuticals, Inc., has been approved by the Committee for Medicinal Products for Human Use (CHMP) of the European Medicines AgencyWEITER