A few weeks ago we had updated the chapter "Aplastic Anaemia". Now we added the new text on Paroxysmal Nocturnal Haemoglobinuria (PNH): https://aa-pnh.org/en/diseases/pnh/.
Further, we published a new patient story: WEITER
On May 11th, after two years, the 5th Patients and Family Members' Day for Aplastic Anemia and PNH took place in Ulm in the premises of the Institute for Transfusion Medicine and Immunogenetics with many interesting lecturesWEITER
Ravulizumab (Ultomiris®), the successor to eculizumab (Soliris®) by the manufacturer Alexion Pharmaceuticals, Inc., has been approved by the Committee for Medicinal Products for Human Use (CHMP) of the European Medicines AgencyWEITER
On February 22nd, 2019, an exhibition of around 20 self-help groups including the Aplastic Anemia & PNH eV took place in the Mainz town hall from 9 a.m. to 1 p.m. as part of the day for rare diseases. The event was organizedWEITER