society Tag

07/12/2020

Pandemic Impact Survey on AA / PNH Patients

In July / August 2020, under the leadership of Priv.-Doz. Dr. Fabian Beier started the first round of a survey to record the effects of the SARS-CoV-2 pandemic on AA and PNH patients in Germany. The focus was on the availability of information on COVID-19 and delays in treatments. We were very pleased that the lichterzellen foundation and our association were included in the design of the survey.
The evaluation of the first round of questions showed that around 20% of the respondents had little or no access toREAD MORE
By Ulrike
12/04/2020

AA & PNH eV on Facebook

Our association Aplastic Anemia & PNH eV, AA & PNH eV for short, now has its own page on Facebook ! There we present the association and its history. We also point out events such as group meetings and patient days as well as information on the diseases and current topics.


AA & PNH eV - Front page Facebook READ MORE
By Ulrike
08/03/2020

DLH member annual meeting 2020


On 7th and 8th March 2020 the annual general meeting of members (MJHV) of our umbrella association, the German Leukemia & Lymphoma Aid eV (DLH) took place in Königswinter. Since the spread of the SARS-CoV-2 virus only affected a manageable number of people and the district health department had not a single case, the event could be carried out as planned.

The first day was dedicated to the advanced training of the group leaders present. 4 workshops were offered:

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By Ulrike
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