Information booths

20th anniversary of the association – a look back

Do you know this feeling? Wake up in the morning, maybe it smells like coffee, maybe breakfast is already ready and someone gives a bouquet of flowers or a first gift - someone calls and congratulates, a serenade at work or among friends and at the end of the day a nice, big one Celebrate with ... stop! It's February, it's the year 2021 and the corona pandemic still has a firm grip on our country and the world. The first lockdown was decided almost a year ago and it is very likely that you have already experienced it: It is your birthday in the pandemic .

Our association Aplastic Anemia & PNH eV also celebrated its birthday last week, namely its 20th anniversary. For known reasons, however, there was no question of “celebrating” in this context - even if we did not give up hope of being able to make up for it one day. Until then, however, we don't want to simply skip the club's anniversary: It's a wonderful opportunity to review the past 20 years. Perhaps you have been with us from the start, perhaps you only became aware of the association a few weeks ago: We are very pleased that you are part of it, we would like to thank you for your interest, your questions and suggestions, and we would like to take a look back at you invite you to 20 years of AA & PNH eV.

WEITER

5th seminar for patients and relatives in Ulm

On May 11th, after two years, the 5th Patients and Family Members' Day for Aplastic Anemia and PNH took place in Ulm in the premises of the Institute for Transfusion Medicine and Immunogenetics with many interesting lecturesWEITER

Rare Disease Day 2019 in Mainz

rarediseaseday.org On February 22nd, 2019, an exhibition of around 20 self-help groups including the Aplastic Anemia & PNH eV took place in the Mainz town hall from 9 a.m. to 1 p.m. as part of the day for rare diseases. The event was organizedWEITER